The Cost of Hope

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This picture is what most days feel like on this project, upside down.

I guess I have been spinning around in the excavator a few to many times a day lately.  For a while now I have had a question in my head.  It started with work.  I am currently in the middle of a very large project that has me tied up or maybe fit to be tied.  I don’t know which.  Even before it started and even when I bid on it I knew that it was going to test me.  It is not the biggest project or the most complicated that I have ever done, but I knew that with everything else going on in my life it would take
a lot out of me.  I began to ask myself, Casey why are you doing this?  Besides the basic reason that I have to work to make some money, why even bid on it much less do it?  I mulled this around in my head for a long time and decided that I needed to do this.  I needed to do this for a whole lot of reasons, but the main reason was hope.  I needed hope that tomorrow was going to be a better day.  I needed hope that maybe in six months things would be back to normal.  Maybe I would be back to normal.

So here we are halfway through the project and guess what, nothing is back to normal.  That is okay.  I will get through this, but I am sure I have many people around the job site scratching their heads with the same question that I had, Why?

I write a lot about hope.  I think it  is very important that we have hope everyday.  We hope for rain, we hope for good report from our boss, we hope that we will feel better tomorrow.  Hope gets us through a whole bunch of things, but as I was deep in the midst of my project and things we not going to plan, I started to question myself. One day the question popped into my head, what is the cost of my hope?

Over the course of a couple of weeks I would mull the question around in my head and came up with what my costs could be.  I am not talking about monetary costs.  I was contemplating what I myself had lost so that I could still maintain my hope for just a little while longer.  I had never really thought of hope in this context before,  everything has a cost. What are mine?

As I ran through my balance sheet for hope, I realized that to me my cost for hope are pretty high.  So after feeling sorry for myself for a while I decided that maybe I should compare my costs to someone else’s.  So I started thinking again.  Rolling it around in the mud I was playing in.

I started by just asking the question, “What is (pick someone)’s cost of hope?”  What does it cost a soldiers for his hope in a brighter future for his people?  What does it cost a seven-year old, whose father beats him, to have hope?  What has a young widower lost in herself to ensure that her children grow up with hope for a better tomorrow?  What is the cost of hope for a mother in an inner city who is a prostitute so that she can feed her kids?  What has she lost in herself to have hope for a better tomorrow?

I decided after a short time that maybe the cost of my hope really wasn’t that bad, but I decided to keep going.  What is the cost of people’s hope around the world.  What does it cost a father in Iraq to be hopeful for a better future for his children?  What is the cost of a protester’s hope for freedom and peace in the war-torn areas of Africa.  Most of us here have it pretty easy.  Our hope can not get us killed.

So after a couple of months of all of this bouncing around in my head I have come to a conclusion.  Before I judge someone I first need to look at what their cost for hope is.  Then I need to ask myself if I was in their shoes, would I do the same thing so that I could hope for a better tomorrow.  For a whole lot of people around the world their hope is very expensive.

It seems weird to think of hope in this way.  Here is the thing though,  Hope cannot be bought.  Hope cannot be sold.  You can make me hopeful and I can give you hope.  Hope is valuable, but there is no currency to pay for it.  In this country our leaders have a tendency to believe that they can sell you your hope.  Most of them don’t understand what your cost of hope is, and they sure as heck don’t understand the cost of hope around the world.  They need to understand that there are somethings that money can’t buy.  Hope has no boundaries.  Hope has no color.  Hope has no race.  Hope has no gender.  Hope has no lifestyle.  Hope has no income bracket and hope has no price!

Hope, is what brings us together.

 

Isabella’s Prayer

This is a continuation of the previous stories, “The Prayer,” and “My Prayer.”  Some of the references will not make sense if you have not read them also.

So here I am again, wandering the hall of a hospital.  New town, new doctors, new rooms, new nurses, same story.  She finally fell asleep.  We have been here since yesterday trying to figure some things out.  The models at Vogue have nothing on her.  They have taken so many pictures of her body they could fill a magazine for a year.  After the thirteenth blood draw I was starting to look for long fangs on the nurses, someone here has to be a vampire.  I quietly have sat in my plastic chair, trying to be her rock.  Trying to bring comfort and relief.  Feeling like I have been failing miserably at all of the above.  They have finally found something that would at least take the edge off of her pain.  She fell asleep fitfully at first, but then slowly got into a rhythm.  I had to move.  My body hurts.  I told the nurse’s my phone number and told them to call me if she wakes up.  I need to wander.  I need breathe.

I need to clear my head, but that is the problem.  I can’t.  We are exhausted.  Physically we are running on fumes.  That would seem to be enough, but that is not the hardest part.  The hardest part of this journey is the mental part.  We don’t walk a straight line.  Most of it is uphill.  There are no halftimes, timeouts, or commercials.  We are just on all of the time.  Our story playing on and on.  It’s not even in HD.  Our weariness is so overwhelming it is like watching our life in black and white, everything is fuzzy and every once in a while we get that blank stare like when on the old tv’s you would get the rainbow screen with, “We are having technical difficulties.”  I have to keep moving or I will just crash, or at least that is what I tell myself.  I might crash to begin with, but then it turns into a crash up derby with my bed as I toss and turn because my body just wants me to stop.  It’s telling me that it is tired, So tired that it can’t get comfortable.  So of course I do the opposite and get out of bed.  I wander lost in thought of the next big climb.  The next set of stairs to get us where we need to be.  Trying to pull courage out of my little toe because it feels like all the rest of it has been used up.  Whether it is true or not I feel like I must have enough courage for all of us.  I feel like I need to be William Wallace standing in front of my army willing all of us to succeed.  Willing all of us to heal.  Probably carrying burdens that I don’t need to carry, but that is just my nature, so I do it anyway.

I start walking hallways and then different hallways on different floors.  I won’t admit to myself what door I am looking for but I know that if I wander long enough I will find it.  This is a big hospital and it is all new but it will be here, and I will find it.  After an hour of aimlessly walking on purpose I find my door and slowly walk in.  Hoping that I might find a moment of peace in the midst of chaos.  I sit down and try to find it.  I don’t ask “why” anymore.  It is what it is.  My thoughts turn to how to heal her and Miracles.  I suddenly feel a rush of sadness.  I keep hoping Walter or Father Francis would come walking in this door and tell me that everything was alright.  That we were all going to be okay.  That someday all of this was going to be worth it.  They are not here and I can’t be here anymore either.  I get up and go.  I need some fresh air.  I jump out the first outside door I run into.  I just need to breathe,  My anxiety goes into overdrive, my heart is racing.  I take in deep breaths trying to get under control.  I just want to scream, I want to crush something, I want to show something that I am in control of what is happening in my life.  I feel it coming and I try to hold it back.  I choke on my tears as they try to get out.  I won’t let them.  I shake as I hold them in.  Every muscle in my body is contracted as I squeeze the sadness so that it won’t get away.  I don’t win.  My sadness flows from my eyes as the tension from I don’t know how long is released.  I crumble to the ground with my back against the wall and my head in my hands.  My burdens fall to the ground with each drop.

I slowly gather myself up.  I really don’t feel any better or worse, more numb than anything else.  I just sit there and stare at nothing.  Feeling more embarrassed that I lost control, and very thankful that it is dark and the middle of the night and no one is around.

“Are you done?”

I about jump out of my skin.  I ran out of the building so fast I didn’t notice the wheel chair sitting to my right in the corner.  If I didn’t know better I would think that I am in the movie “Houseboat.” I am Cary Grant and Sofia Loren is talking to me.  She says it again in a beautiful Italian accent,

“Are you done?”

I am so caught off guard I really don’t know what to say, so I just say, “yes.”

“Gooood,” she says, “I am niiinty-twooo years old and I no-a-like-a people to be sad.”

I am gaining my senses and I ask, “Why are you here?”

“Ahh,” she says, “I sleep-a when I die, I make-a them bring me out-a here whenever I want too.”

“Okay,” I say, “but why are you here?” As I gesture to the hospital in general.

She throws her hands in the air in a grand gesture of disdain and says.  “My-a damn kids-a put me-a in a here.  They-a think-a there is a miracle-a waiting for a-me-a here. I a-have-a the cancer,  I am-a niiinty-twooo.  It is all-a-ready a miracle that I have-a lived -a- this a long.”

I chuckle and smile for the first time in thirty-six hours.  It feels really good.

“And zyou,” she says, “Why are you here?”

I begin to relay our story.  How we have been fighting for so long, and how we are so tired and worried and stressed.  I finished up and we sat in silence for a few minutes and I began to wonder if maybe she had fallen asleep, then she finally spoke up.

“So you-a here for-a miracle-a too?

I really wasn’t ready for that question.  I had really never thought about it like that, but the more I thought about it I guess she was right.  So I said, “yes I guess that is why we are here.”

“Tsk tsk tsk,” She says, “The foolishness of -a- the young-a-people,  you-a-think-a that-a miracle is-a easy.  Just-a-cause its a miracle does-a- not -a- make it -a painless.”

Yes, okay, I felt the slap in the face.  I raise my hands in a “slow down” gesture and say, “No that’s not what I’m thinking.  Sometimes I wonder if God is hearing me though,”

“Tsk Tsk Tsk,” she says again,  “He is-a- hearing -a- you-a- fine.  You no pay attention to what-a- he-a-doing worth a darn”

Yep, okay,slap, I felt it.  “What do you mean?” I ask.

“You -a-already-a-missed the first-a-miracle.  You-a- to -a- worried about the big -a- miracle and you are -a- missing all of -a- the -a-little ones.”

I’m lost, “What do you mean?”

“Time -a- you imbasile.  You -a- fight a long-a- time, You -a- get a more time than most yes.  That -a- is -a- the first -a-miracle!”

We sit in silence for a while.  I’m trying to let what she is saying sink in.  Trying to understand the depth of her thoughts.  I want to clarify so I ask, ” So what you are saying is that because I have been wanting, worrying, hoping, and praying for the big miracle that I have not been paying attention to the miracles that God has already granted in my life.  Including but not necessarily limited too more time with her than average.”

“Zyes, and time is-a- costly,”

I slowly nod my head in understanding.  “What’s your name by the way?”

“Isabella.”

“Well, thank you Isabella.  Thank you for some much needed perspective that I evidently really needed right now.”

Her expression softens and she says, “Come-a- now my-a- young-a- friend.  You -a- pray -a- with -a- me now. ”

I get up and move over to her and she grabs my hand with both of hers and begins.

“Dear -a- Father in -a- Heaven.  Please give -a- this -a- young man enough of -a- the strength to see your -a- miracles as you -a- give -a- them.  Hold -a- them all in your -a- grace and grant them a little -a- peace some -a-times.  He -a- is a good -a- young man,  help him as -a- you a see -a- fit.  In the name of the Father, the -a- Son, and the Holy spirit, Amen.

She gently squeezes my hand and says.

“you -a- get -a- back now.  You gone to long all -a- ready.”

With that I feel that I have been dismissed from my own private Catholic school.  I get up and go back inside and try to find my way back to where I am supposed to be.  As I walk I replay our journey in my mind and try to find how many places I probably have missed Gods hand in our lives.  It’s probably the same thing that Chester was talking about when he talked about providence.  I guess who ever said it was right.  “Sometimes we are to busy looking at the forest to see the trees.”  I don’t know if what Isabella said will change anything in my life.  I am still tired, but it will change the way I look at things.  What she said made me realize that even though I might not know it at the time, someone is standing with me and I am not alone.  For me that is worth more than anything.  So I will march on.  I will fight with what courage I have left and lead my warriors into battle no matter the odds.  I am not William Wallace but I have someone so much bigger on my side.

Five Years

October eleventh marked the five year anniversary for Tammy’s original diagnosis.  I don’t have  words for what these years have been like or what they have meant to us, so I thought I would just show it in pictures.  I don’t have any answers to how to live life.  All I know is that we have tried to “live” through it.  We tried to never let cancer stop us from living the life that we wanted.  Sometimes it is really tough, but just because somethings are hard sometimes doesn’t mean that you should stop doing them.  Because they are hard we appreciate them so much more.

Tammy was Thirty-nine when she was diagnosed.  I was thirty-eight.  Tanner and Kylee were both thirteen.  Morgan was eleven and Tucker was five.  We have all grown so much.

Engagement Picture
Engagement Picture
Not to long before diagnosis
Not to long before diagnosis

 

Celebrating by letting balloons go after first round. We thought we were done.
Celebrating by letting balloons go after first round. We thought we were done.
I asked Tammy to marry me again.
I asked Tammy to marry me again.
After the Ceremony
After the Ceremony
Rediagnosed in June of 2012.
diagnosed again in June of 2012.

 

 

 

 

 

 

 

My favorite picture.
My favorite picture.
Great Friends
Four great Friends out of many.
Chemo day.
Chemo day.
Tucker Loves his Momma
Tucker Loves his Momma
Chemo day with Angie
Chemo day with Angie

 

 

 

 

 

 

Basketball teams wearing the team Thaxton shirts
Basketball teams wearing the team Thaxton shirts
Tanner sophmore football
Tanner sophomore football
Kylee and Morgan Volleyball junior and sophomore
Kylee and Morgan Volleyball junior and sophomore
Prom Tanner junior and Kylee sophomore
Prom Tanner junior and Kylee sophomore
M. D. Anderdson
M. D. Anderdson
Tanner senior night in football
Tanner senior night in football
Tanner-senior Kylee-junior Morgan-sophomore Tucker-third
Tanner-senior
Kylee-junior
Morgan-sophomore
Tucker-third
Senior night basketball
Senior night basketball Tammy trying not to cry.
fourth of July
fourth of July
Prom Tanner-senior Kylee-junior
Prom
Tanner-senior
Kylee-junior
Galveston with Kylee
Galveston with Kylee
Family Picture
Family Picture
Five years and we are still going strong,
Five years and we are still going strong,

 

Hodgepodge-St. Louis, Beginings, Ending, Past, and Present

Its been an interesting day here in St. Louis.  It started pretty early and was pretty uneventful.  Tammy’s fist infusion went off without a hitch and she is feeling pretty good.  For me it was a long day of sitting in a nice plastic chair with lots of time to think about things.

Today was a beginning for us.  It’s interesting that one of my memories on Facebook for a year ago was, “Chicago, The Saga Continues.”  If you haven’t read it’s a good one.  We just so happened to be  a little bit north and west of here in Hannibal on our way back from Chicago.  It’s interesting how some thin14494870_1250673808328932_2623273091055529943_ngs in our lives work out and some of them don’t.  It will be a quick trip.  Tammy has to give blood tomorrow and take vital signs about one-thirty and then we will get on the road back home.

As we were sitting her all day I saw a post from one of my friends who lost her husband last year.  The anniversary is tomorrow.  She is having all of the same feelings she did a year ago.  It breaks my heart.  She is lost in trying to find who she is in this new beginning, hurting from the past, and trying to live in the present.  My heart goes out to you my friend and you will be in my thoughts and prayers.

Wednesday another good friend is going in for surgery.  She is such a fighter.  My hope is that if you read this that Wednesday morning you might look towards Houston and send a whole bunch of positive energy her way.  Let Wednesday be a new beginning for her.  Let it be a day that the pain stops and she can feel good.  I would love to see a map of the world with all of the energy passing around it.  Our thoughts and prayers are so powerful.

Today I did a lot of thinking about the title of this.  All of us, everyday, are in some kind of beginning and some kind of ending.  We are looking through our past and hoping for the future.  Most of our lives we are somewhere in between the start and the finish of things.  Sometimes the beginnings are exciting and the endings are sad.  Sometimes it is just the opposite, we find out that because it was so hard in the beginning the ending is so much sweeter.  I don’t know what the answer is to living a good life.  I don’t try to plan my life anymore.  All I know is that some days I am going to kick life around.  Some days it will be a draw, and some days life is going to kick me up one side and down the other.  Every day I try to put myself into someone else’s life.  Especially when  I am getting knocked down, because I need to remember that no matter how bad I think my life is going, there is someone out there that is looking and me and saying how lucky I am.  I don’t have a monopoly on hard times.  I do have a monopoly on how hard I am willing to look at my own life and decide that I am still very blessed.  Our blessings really are not measured by our bank accounts or the cars we drive.  It is living a simple life  measured by the love we share with others and the number of people we can call friends.  If all of you are any measure then I am truly blessed,

Let tomorrow be your new beginning, by remembering the past, keeping hope in your future, and knowing that there is always an ending.  Most important, live in the present with love on your shoulder and friendship in your heart.  Thanks to all of you for your unending love and support.  20161003_155920